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Special Services - Navigating the System
Author: Andy Smithson
If you have a child with a developmental disability, or a child with a mental health diagnosis, you know how confusing life can be at times. Many parents that have children with these problems don't know where to turn, or what to do, to make sure their kids get the added help they need to make them successful in every avenue of their lives. There are many different approaches parents can take but the number one thing to know and understand is that you, the parent(s), and your child are the captains of your ship and are at the helm, navigating your child and family where you want to go. No matter what treatment or service you seek out, or who you select to provide that service, treatment will always be more effective when parents are active participants in the process.
Getting expert opinions and help is important in bridging gaps between your child and your own growth, as a parent of a child with a disability. Don’t let the letters at the end of a professional’s name keep you from asking questions. If the treatment includes medication, know the medication in and out. Ask about side effects and short- and long-term outcomes. Ask for written materials on the medication. Google it. If the treatment includes some kind of therapeutic intervention, ask “what can I do to implement this at home?” Therapists love a parent who is open to positive change.
There are many services that are available to kids with developmental or mental health conditions. Schools can create an IEP (Individualized Education Programs) or Behavioral plans that are individualized for your child. If your child already has one of these plans, know what it says and encourage and help the school to carry it out effectively. If parents are actively involved in this process, these plans can work very well; but when the school does not feel accountable to the parent, things can fall through the cracks. Almost every state has some form of developmental/behavioral service that can be utilized. With a simple call to Department of Health and Welfare or Mental Health, you can get a list of quality service providers in your area. There are also private and non-profit entities that can help you with you and your child's needs. Private counselors, or religious counselors at a local church, can also be effective. Many larger cities also have after-school boys and girls groups available. The most important things to know and do when trying to navigate through the maze of programs and services is:
- Identify your options (ask for a provider list from your physician or state health and welfare department)
- Ask a million questions- and get straight answers.
- Find people who have used the services and get their feedback.
- Be persistent in getting quality services.
- Be actively involved in every aspect of help or treatment for your child.
- Understand a program or service before immersing your child in it. Don’t be afraid to ask a doctor, psychiatrist, psychologist, or social worker questions, and share your concerns about different elements of the recommended treatment or service.
Remember that the services offered in schools and communities are an extension, and support, to the parent, rather than the other way around.
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